Her health journey began in 2002, at the age of 12, with what was thought to be a stomach virus but turned out to be E. Coli food poisoning. Over the next couple of years, Kailen went through various medical testing and tried multiple medications but nothing seemed to completely address the health issues.
In 2005, at the age of 15, through an EGD colonoscopy, Kailen was diagnosed with an inflammatory bowel disease called Ulcerative Colitis (UC) and began taking several daily medications along with making major diet changes.
In 2008, at the age of 18, Kailen was diagnosed with a rare, anatomic disorder called May-Thurner Syndrome as well as a blood clotting disorder called Lupus Anticoagulant. These were found after a blood clot that had formed in her pelvis broke loose, went through her heart, and into both lungs. This resulted in multiple surgical procedures where a stent was placed in her left common iliac vein and a permanent filter was placed in her inferior vena cava. This was also the beginning of life on daily blood thinning medication.
In early 2012, while receiving an IV infusion treatment for UC, Kailen went into anaphylactic shock. This IV medication was the final treatment option for Kailen concerning UC. The UC was then labeled as “failure to respond to treatment” and plans were made to have her entire colon removed in January of 2013.
However, in September 2012, at the age of 22, colon removal was put on hold when, after finding a lump in one of her breasts, Kailen was diagnosed with Stage 4 Breast Cancer with Bone Metastases. Since the diagnosis, Kailen has undergone many chemotherapy treatments and is fighting the battle with cancer with a very positive attitude and full of faith.
Recently, Kailen’s oncologist and gastroenterologist determined it is critical for her to be seen at Mayo Clinic in Rochester, Minnesota, where a team of specialists can address the many health issues she faces.
Kailen has been accepted to the Mayo Clinic in Rochester, Minnesota and that is where the next leg of her journey will take her. Keep up with Kailen via her twitter hashtag #teamKCT or right here on her website.